Muscular Dystrophies and related conditions are genetic conditions affecting the
muscles. Some Spinal Muscular Atrophies and Hereditary Motor and Sensory Neuropathies
affect the nerves and in turn affect muscle strength.
There are more than twenty types of Muscular Dystrophy and they cause progressive
muscle weakness because muscle cells break down and are gradually lost.
Duchenne Muscular Dystrophy is the most common in childhood usually affecting boys,
and is usually diagnosed between 1-5 years of age.
Myotonic Dystrophy is the most represented in the adult population.
For some people their Muscular Dystrophy is seriously disabling and for others may
be life limiting. Some people may be more mildly affected. Incidence
The prevalence of these conditions is 50 per 100,000.Of the 30,000 people in the
UK who have muscular dystrophy or a related condition, 4000 are children.
Duchenne Muscular Dystrophy affects 1 in 3,500 live male births. The impact on health
and social care services
In addition to the 'core' team, people with a Muscular Dystrophy may need input from: