Swindon and Wiltshire Neurological Alliance

Helping improve the lives of those affected by neurological conditions in Swindon & Wiltshire

 

 

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Motor Neurone Disease

 

What is Motor Neurone Disease?


* MND is a rapidly progressive, fatal disease

* The cause of MND is unknown and there is no known cure

* It is most common after the age of 50

* More men than women have the condition (3:2)

* 50% of all people die within 14 months of diagnosis

* It is characterised by progressive muscle weakness which may leave a person unable to walk, use their arms, or talk, whilst their intellect frequently remains intact.

Incidence and prevalence
 

The incidence of MND is approximately two per 100,000, which suggests that there will be 101 new cases of MND diagnosed each year in the South West.


The prevalence of MND is approximately seven per 100,000, which would result in 353 currently living with MND in the South West.

The impact on health and social care services
Over the course of their disease, people with MND are likely to require input from a large number of health and social care professionals including:

* Neurology consultant, specialist nurse, specialist therapists
* Occupational therapists
* Physiotherapists
* Dietitians
* Speech and Language Therapists
* Gastro-enterology/endoscopy team
* Respiratory team
* Palliative care services
* Paid carers - for direct care and also for carer respite

A large number of pieces of specialist equipment is likely to be required (eg. specialised wheelchairs, non-invasive ventilators, environmental controls, communication aids).

 

Group

The North Wiltshire Group

Short Description

Provides information and support for people with MND and their families in the North of the county. Support meetings are held regularly in Swindon and Calne. Association Visitors can also provide one-to-one support.

Email:

moya.wallis@virgin.net

 

Contact Details

Moya Wallis on 01380859611

 

Group

The South Wiltshire Branch

Short Description

Provides information and support for people with MND and their families in the Salisbury area. Support meetings are held regularly in Bulford, and coffee mornings in Salisbury. Association Visitors can also provide one-to-one support.

Email:

josephine@weaver4.orangehom e.co.uk

 

Contact Details

Margaret Weaver on

01590 675106

Group

The Bristol, Bath, Weston and Winsley Group

Short Description

Provides information and support for people with MND and their families across a large area which includes West Wiltshire. Monthly support meetings are held in Winsley Church Hall. Association Visitors are also
available to provide one-to-one support.

Email:

daphne@daffers.org.uk

Contact Details

Daphne Cox on 01225 868224

 

Group

Motor Neurone Disease Association, North Wilts
Group

Short Description

We support local people with Motor Neurone
Disease by running support groups, visiting,
helping with funding requests, raising awareness
of the disease, fundraising etc

Website

www.mndnorthwilts.org

 

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